• In Science Direct, we describe the patient experience of living with neuromyelitis optica spectrum (NMO).
  • Our paper, “Building a Learning Health Community: by the People, for the People” charts the development of the Patient and Caregiver Journey Framework and related patient-informed principles for design and measurement.
  • Our survey of 95 members with advanced non-small cell lung cancer found that patients who experienced considerable weight loss reported worse function, lower health-related quality of life, and more symptoms such as fatigue and changes in food taste than those who did not have weight loss.
  • A new study published in Biomed Central describes drivers and barriers to trial participation and condition-specific trial preferences.