Patient perspectives on neuromyelitis optica spectrum disorders: Data from the PatientsLikeMe online community

Publish Date:

Friday, July 14, 2017

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NMO (also known as Devic’s disease) is a rare disorder once thought to be a variant of multiple sclerosis (MS). In this paper we describe the patient experience of living with NMO based on data from our community on PatientsLikeMe. Median delay from symptom onset to diagnosis was about a year, with the three most frequently reported symptoms being fatigue, pain, and stiffness/spasticity. Relative to MS patients, NMO patients had more vision problem and fewer cognitive problems.