Clinical trials from the patient perspective: survey in an online patient community

Publish Date:

Monday, February 27, 2017

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Developing new medicines relies on the successful completion of clinical trials, but it is difficult to recruit and retain patient volunteers. This study sought to describe drivers and barriers to trial participation, as well as condition-specific trial preferences. We found that most patients are willing to enroll, yet very few are invited. Trial participation is often burdensome, but patients are willing to help improve trial design. Researchers should allow patients to help design better trials to overcome recruitment and retention issues and hasten the development of new medicines.