As Vice President of Advocacy, Policy and Patient Safety, Sally ensures the patient voice, represented in PatientsLikeMe’s member community, is heard, collected and disseminated to affect better treatment, services and care. Sally also serves as the company’s liaison with government and regulatory agencies. She actively participates in national and international discussions to educate policy makers on the benefits of sharing health data, and to ensure patient needs are at the front of the healthcare discussion. In addition, Sally’s position includes responsibility for PatientsLikeMe’s ongoing work in drug safety. She ensures the data collected about treatments and their impact become even more transparent to members and the healthcare community at large.
Sally joined PatientsLikeMe in 2008 and led the team responsible for the website’s medical ontology and curation of patient-reported health data. She has since been a frequent speaker at policy workshops and forums and has contributed to peer reviewed publications and discussion papers for the Institute of Medicine (IOM) and others.A registered nurse for over three decades, Sally’s clinical practice specialized in palliative and end-of-life care. She received her nursing diploma from the Hospital of St. Raphael School of Nursing and holds a bachelor’s degree in Nursing from Southern Connecticut State University as well as a master's degree in health and human services management from Brandeis University’s Heller School for Social Policy and Management.