The rise of social media in our society has been nothing short of phenomenal. It’s hard to believe that Facebook has been with us for over a decade now and boasts more than a billion and a half users, of all generations, worldwide.
More Australians are turning to mobile health apps and websites to research alternative therapies and connect them with people who have similar medical conditions. One is PatientsLikeMe, which allows users to track the severity of their symptoms and measure the effectiveness of treatments.
We’re all frustrated by the high cost of US health care and a system that’s challenging for patients to navigate and does not consider patients’ goals and wishes. Both the public and private sectors are working hard to discover ways to transform the system by increasing value and becoming more responsive to patients’ needs and preferences.
Do pharma companies see themselves in a product business or the disease management business? Or, where possible, in the disease prevention/wellness business? These are the key questions that will determine whether they merely survive or thrive. Ben Heywood is one of the individuals cited with the clearest, practical vision on what will drive success in the healthcare industry.
PatientsLikeMe Co-founder and President Ben Heywood, who created PatientsLikeMe after his brother Stephen was diagnosed with amyotrophic lateral sclerosis, or ALS, has seen many success stories, but the biggest one may be yet to come: creating validated measures that would ensure the patient’s voice plays a role in whether drug makers, physicians, and hospitals get paid.
Insomnia may be lurking undiagnosed among many patients with chronic diseases like Parkinson’s and rheumatoid arthritis, according to a recent survey of thousands of members of the patient network PatientsLikeMe.
PatientsLikeMe revealed results from the first large-scale poll to assess patient priorities for the health care law. The poll’s 2,197 respondents are among the estimated 133 million Americans living with chronic conditions.
PatientsLikeMe co-founders Jamie and Ben Heywood were awarded the prestigious 2016 Humanitarian Award by the International Alliance of ALS/MND Associations. The Humanitarian Award is awarded to those whose work is of international significance for people affected by ALS/MND.
Nature features PatientsLikeMe and a PatientsLikeMe member in a piece focused on precision medicine
The Wall Street Journal features PatientsLikeMe’s virtual trial with Duke ALS Clinic