PatientsLikeMe has lured Marni Hall away from the FDA. Hall, who until recently worked on data analysis and management at the FDA, will now drive forward PatientsLikeMe's ongoing effort to turn its growing repository of patient-reported data into tools that improve research and health outcomes.
PatientsLikeMe offers a platform for patients to be able to measure their levels of health and sickness over time. According to Martin Coulter, CEO of PatientsLikeMe, the idea is not only to provide patients with a way of tracking their own journeys in sickness and care (patient reported outcomes [PROS] such as insomnia and fatigue), but also be able to measure the impact of interventions.
Richard Bedlack has treated more than 2,000 patients with ALS, the neurological condition also known as Lou Gehrig’s disease. Almost without exception, his patients get worse over time and eventually die.
Telehealth's potential to transform and enhance healthcare delivery reads something like a top-ten list of no-brainers: convenience, timeliness, and cost savings, to name but a few. At times it sounds almost too good to be true. So does the experience live up to the promise for all parties? Better yet, could telehealth become an evolutionary pathway for something even more profound?
A local Cambridge health care technology company that helps chronically ill patients connect through an online community received high praise from Dr. Jill Biden during a local visit yesterday as part of Vice President Joe Biden’s Cancer Moonshot Initiative.
During their final year in office, President Obama assigned his veep, Joe Biden, to oversee a huge effort: to end cancer as we know it. On Tuesday, the vice president’s wife, Jill Biden, will be in Boston as part of that “moonshot” to accelerate cancer research and treatment.
PatientsLikeMe revealed results from the first large-scale poll to assess patient priorities for the health care law. The poll’s 2,197 respondents are among the estimated 133 million Americans living with chronic conditions.
PatientsLikeMe co-founders Jamie and Ben Heywood were awarded the prestigious 2016 Humanitarian Award by the International Alliance of ALS/MND Associations. The Humanitarian Award is awarded to those whose work is of international significance for people affected by ALS/MND.
Nature features PatientsLikeMe and a PatientsLikeMe member in a piece focused on precision medicine
The Wall Street Journal features PatientsLikeMe’s virtual trial with Duke ALS Clinic