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Press Releases

  • 7/14/15 8:00 am EDT
    A new survey of 219 PatientsLikeMe members has found that patients with certain conditions who use medical marijuana believe it is the best available treatment for them, with fewer side effects than other options and few risks. The survey, conducted in June 2015, is among the first to gauge patient perceptions about the benefits and risks of medical marijuana and their level of willingness to recommend its use. PatientsLikeMe’s Vicemore...
  • 6/15/15 8:00 am EDT
    PatientsLikeMe and the U.S. Food and Drug Administration (FDA) have signed a research collaboration agreement to determine how patient-reported data can give new insights into drug safety. Under the collaboration, PatientsLikeMe and the FDA will systematically explore the potential of patient-generated data to inform regulatory review activities related to risk assessment and risk management. The announcement was made at the start of the Drugmore...

Research

  • Veterans living with seizures are often isolated and struggle with self-management. In a six week trial of PatientsLikeMe as an intervention, a collaboration with the VA Epilepsy Centers of Excellence and UCB found a significant improvement in patient self-management and self-efficacy using validated patient-reported outcomes. Internet based psychosocial support may be a scalable approach to improving patient self-management in challenging chronic conditions.

  • The past few years have seen the launch of a variety of consumer devices (including smartphones) that allow users to measure their activity, steps, sleep, stress, and other vital signs. People living with chronic health conditions may have different goals, challenges, and constraints using these devices, but may well have the greatest opportunity to benefit by better managing their conditions. This editorial explores the opportunities and pitfalls that such monitoring may present to patients

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  • The design, conduct, and successful execution of a clinical trial depend on the input of a multidisciplinary team of scientists, clinicians, contract research organizations (CROs), regulators, and pharmaceutical executives. However, the one group on whom the entire endeavor relies is often missing from the table: patients.

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From Twitter

Happy Monday! Here's your Monday Morning Inspiration. http://t.co/mFLKHTsjF2 http://t.co/4tDAeaHEWP-22 min 1 sec ago
#Diabetes member Dropsies shares some of her diabetes-friendly recipes with us: http://t.co/5qs6SxPzeg http://t.co/rbtMmPHEGH-23 hours 37 min ago
How can poetry empower people living with chronic illness? http://t.co/vjpqT3wwNF via @NewsHour-1 day 17 hours ago
"What was your journey like to diagnosis?" - The $6 million question, for #multiplesclerosis member Anna. http://t.co/K3vRWl0xwE #MS-2 days 21 min ago