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Press Releases

  • 11/9/15 8:00 am EST

    Real-world, clinical insights and patient engagement central to improving health outcomes

    The American College of Cardiology (ACC) and PatientsLikeMe have launched a partnership to explore innovative ways to make real-world patient feedback and experience more central to diabetes research and care. Focused on the ACC’s Diabetes Collaborative Registry®, the partnership will encourage people living with diabetes to offer perspectives to enhance and accelerate the registry’s research and development agenda. The announcement was mademore...
  • 10/19/15 8:00 am EDT
    PatientsLikeMe has named 14 members to its patient-only 2015-2016 Team of Advisors and challenged them to work through an issue that’s central to everyone in the healthcare system: how to redefine patient partnerships. The team will be focused on rethinking what it means for patients to be partners, and on establishing new ways for the healthcare industry to connect with patients to deliver better care. PatientsLikeMe CEO Martinmore...


  • Veterans living with seizures are often isolated and struggle with self-management. In a six week trial of PatientsLikeMe as an intervention, a collaboration with the VA Epilepsy Centers of Excellence and UCB found a significant improvement in patient self-management and self-efficacy using validated patient-reported outcomes. Internet based psychosocial support may be a scalable approach to improving patient self-management in challenging chronic conditions.

  • The past few years have seen the launch of a variety of consumer devices (including smartphones) that allow users to measure their activity, steps, sleep, stress, and other vital signs. People living with chronic health conditions may have different goals, challenges, and constraints using these devices, but may well have the greatest opportunity to benefit by better managing their conditions. This editorial explores the opportunities and pitfalls that such monitoring may present to patients

  • The design, conduct, and successful execution of a clinical trial depend on the input of a multidisciplinary team of scientists, clinicians, contract research organizations (CROs), regulators, and pharmaceutical executives. However, the one group on whom the entire endeavor relies is often missing from the table: patients.


From Twitter

Meet Christel, living with #T1Diabetes, from the 2015-2016 PatientsLikeMe Team of Advisors. https://t.co/IGrjjqgt1U https://t.co/U0ODHWi69o-38 min 28 sec ago
"Lung cancer, is not just about smokers or [non] smokers. Anyone can get it at anytime." - #lungcancer member https://t.co/B1zA35qdOK #LCAM-8 hours 38 min ago
Still leading a full life: an interview with #IPF member David https://t.co/wiwHIJbzmL https://t.co/qU9fEBjRCT-1 day 38 min ago
If you're caregiving for a loved one living with #Alzheimers, connect with others who understand your experiences. https://t.co/Xrqa83e1MX-1 day 8 hours ago