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Press Releases

  • 12/8/15 8:00 am EST

    Patient Network to Work with the National Quality Forum to Ensure Patients Drive Healthcare Value

    PatientsLikeMe has been awarded a $900,000 grant from the Robert Wood Johnson Foundation (RWJF) to help jumpstart changes that will amplify the patient voice in the measurement of healthcare performance. A portion of the grant funds a collaboration between PatientsLikeMe and the National Quality Forum (NQF) to develop, test and facilitate the broader use of patient-reported outcome measures (PROMs) to assess patient-reportedmore...
  • 12/1/15 8:00 am EST

    The Gift of Health Data Can Help Others, and Advance Research

    On this #GivingTuesday, PatientsLikeMe is once again celebrating “the new tradition of generosity” by encouraging people to donate something unusual but vital: their health data. Starting today and continuing for #24DaysofGiving, PatientsLikeMe is asking anyone who is living with a chronic condition to donate their health data after donating to their favorite non-profit. PatientsLikeMe is a patient network that aggregates themore...

Research

From Twitter

Dance returns the 'joy of movement' to people with Parkinson's https://t.co/IUSoMrZu9d #Parkinsons #PD https://t.co/V2udzMPiYb-23 sec ago
#ALSONE is an unprecedented partnership between @ALSTDI, @UMassMedNow, @MGHNeurology and @ComCareALS: https://t.co/F9pQi62NGS #ALS-15 hours 45 min ago
The growing PatientsLikeMe #multiplesclerosis community has more than 48,100 members. https://t.co/4HfDtAt2YV #MS https://t.co/Qm3TTh778r-18 hours 23 sec ago
Christel, living w/ #T1D, shares the important role peer support has played in her journey. https://t.co/HkrVpDzcCY https://t.co/zDpLCjRwLy-20 hours 22 sec ago