• Advancing healthcare for everyone through sharing, support, and research
  • Advancing healthcare with patients

Press Releases

  • 8/2/17
    PatientsLikeMe announced today that it has named Greg Ploussios to the newly-created role of Senior Vice President and General Counsel. Prior to joining PatientsLikeMe, Ploussios served as the company’s outside counsel for over a decade, advising and negotiating PatientsLikeMe’s licensing, collaboration and commercial agreements and representing the company in equity financing, mergers and acquisitions, and other corporate matters,more...
  • 6/14/17
    In a new PatientsLikeMe poll of people living with chronic conditions in all 50 states, 2,755 patients shared their priorities for a nationwide health care plan, and showed they are increasingly in favor of modifying rather than replacing the Affordable Care Act (ACA). “Despite the partisan divide in Congress about what should be included in a health care plan, there is a singular voice in patients, who are agreed across partymore...

Research

  • 7/14/17

    NMO (also known as Devic’s disease) is a rare disorder once thought to be a variant of multiple sclerosis (MS). In this paper we describe the patient experience of living with NMO based on data from our community on PatientsLikeMe. Median delay from symptom onset to diagnosis was about a year, with the three most frequently reported symptoms being fatigue, pain, and stiffness/spasticity. Relative to MS patients, NMO patients had more vision problem and fewer cognitive problems.

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  • 6/6/17

    This paper describes the development of the Patient and Caregiver Journey Framework and related patient-informed principles for design and measurement created by PatientsLikeMe in partnership with patients and caregivers using qualitative research methods, immersive observation and directed one-on-one conversations. These tools provide a person-centric foundation upon which the knowledge and experience of patients and caregivers are collected, curated, aggregated and shared to support a data-driven learning health community continuously powered by the people and for the people.

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  • 6/1/17

    To ensure trials are truly reflective of what is meaningful to patients, patients and stakeholders should be engaged during the entire trial process—from planning the trial through conducting the trial to disseminating the results. Identifying, recruiting, training, continually engaging, and compensating an advisory committee of patients and stakeholders to serve as a resource and guide through the trial process is one way to increase the patient-centeredness of a trial.

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