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Press Releases

  • 12/14/17
    PatientsLikeMe has named 13 members to its 2018 Team of Advisors, a patients-only group that collaborates with the company on new research and product development, advocates on behalf of patients, and provides real-world perspectives to industry and PatientsLikeMe partners. “This is now our fourth Team of Advisors, and its members have consistently been some of our most vocal and important partners,” said Executive Vicemore...
  • 8/2/17
    PatientsLikeMe announced today that it has named Greg Ploussios to the newly-created role of Senior Vice President and General Counsel. Prior to joining PatientsLikeMe, Ploussios served as the company’s outside counsel for over a decade, advising and negotiating PatientsLikeMe’s licensing, collaboration and commercial agreements and representing the company in equity financing, mergers and acquisitions, and other corporate matters,more...

Research

  • 7/14/17

    NMO (also known as Devic’s disease) is a rare disorder once thought to be a variant of multiple sclerosis (MS). In this paper we describe the patient experience of living with NMO based on data from our community on PatientsLikeMe. Median delay from symptom onset to diagnosis was about a year, with the three most frequently reported symptoms being fatigue, pain, and stiffness/spasticity. Relative to MS patients, NMO patients had more vision problem and fewer cognitive problems.

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  • 6/6/17

    This paper describes the development of the Patient and Caregiver Journey Framework and related patient-informed principles for design and measurement created by PatientsLikeMe in partnership with patients and caregivers using qualitative research methods, immersive observation and directed one-on-one conversations. These tools provide a person-centric foundation upon which the knowledge and experience of patients and caregivers are collected, curated, aggregated and shared to support a data-driven learning health community continuously powered by the people and for the people.

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  • 6/1/17

    To ensure trials are truly reflective of what is meaningful to patients, patients and stakeholders should be engaged during the entire trial process—from planning the trial through conducting the trial to disseminating the results. Identifying, recruiting, training, continually engaging, and compensating an advisory committee of patients and stakeholders to serve as a resource and guide through the trial process is one way to increase the patient-centeredness of a trial.

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